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  • Page 7
Posted inAutoimmune Diseases

The Role Of Patient Reported Outcomes PROs Assessing Impact Autoimmune Disease On Daily Life Function

The Agony & The Algorithm: Decoding Autoimmune Impact with Patient Reported Outcomes (PROs) (Lecture Hall fills with groaning sounds, not from autoimmune disease, but from the early-morning class time. A…
Posted by admin May 7, 2025
Posted inAutoimmune Diseases

The Importance Of Patient Registries In Autoimmune Disease Research Collecting Data Understanding Disease Course

The Importance of Patient Registries in Autoimmune Disease Research: Collecting Data, Understanding Disease Course (aka: Taming the Autoimmune Beast!) (Lecture Slides with Professor Immunology's Smirking Face on the Title Slide)…
Posted by admin May 7, 2025
Posted inAutoimmune Diseases

The Role of Foundations Patient Organizations Driving Autoimmune Disease Research Supporting Patients

The Role of Foundations & Patient Organizations Driving Autoimmune Disease Research & Supporting Patients: A Hilariously Serious Lecture (Welcome! Please silence your phones and activate your immune systems! We're about…
Posted by admin May 7, 2025
Posted inAutoimmune Diseases

The Patient Voice Living With Autoimmune Disease Sharing Experiences Advocating For Better Care Research

The Patient Voice: Living With Autoimmune Disease - Sharing Experiences, Advocating for Better Care & Research (A Lecture) (Opening music: Upbeat, slightly quirky tune that fades after 10 seconds) (Slide…
Posted by admin May 7, 2025
Posted inAutoimmune Diseases

Recognizing The Importance of Patient Registries Autoimmune Diseases Collecting Data Advancing Research Improving Care,Navigating The Autoimmune Journey From First Symptoms To Diagnosis And Beyond Patient Stories

Navigating the Autoimmune Journey: Patient Registries as Our Compass 🧭 (A Lecture with a Side of Humor & Hope) Good morning, afternoon, or evening, depending on where in the world…
Posted by admin May 7, 2025
Posted inRare Diseases

Exploring The Role of Biobanks Patient Registries Rare Diseases Collecting Storing Biological Samples Data

Welcome, Brave Explorers! Navigating the Wonderful World of Biobanks, Patient Registries, and Rare Diseases: A Biological Treasure Hunt 🧬💰🔍 Alright, settle in, grab a metaphorical (or literal, I'm not judging)…
Posted by admin May 6, 2025
Posted inRare Diseases

Understanding The Role of Foundations Patient Organizations Rare Disease Research Funding Advocacy Support Services

Decoding the Rare: A Hilarious & Helpful Guide to Foundations, Patient Orgs, Research, Funding, Advocacy & Support (Lecture Hall Ambiance: Imagine dimmed lights, a projector screen displaying a slightly pixelated…
Posted by admin May 6, 2025
Posted inRare Diseases

Recognizing The Role of Patient Advocacy Rare Disease Community Driving Research Raising Awareness Accessing Care

Lecture: Recognizing The Role of Patient Advocacy: Rare Disease Community Driving Research, Raising Awareness, Accessing Care (Slide 1: Title Slide with a dramatic, hopeful image of people holding hands, silhouetted…
Posted by admin May 6, 2025
Posted inRare Diseases

Recognizing The Power of Patient Stories Rare Diseases Raising Awareness Inspiring Hope Driving Change

Recognizing The Power of Patient Stories: Rare Diseases - Raising Awareness, Inspiring Hope, Driving Change (Lecture Hall lights dim, spotlight focuses on the speaker) (Speaker, a charismatic individual with a…
Posted by admin May 6, 2025
Posted inRare Diseases

Exploring Patient Advocacy Groups Rare Diseases Providing Support Information Driving Research Access Treatment

Lecture: Navigating the Rare Disease Galaxy with Patient Advocacy Groups: Your Rocket Ship to Support, Information, and Treatment! 🚀 (Slide: A starry night sky with a rocket ship blasting off.…
Posted by admin May 6, 2025

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